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TaySachsDisease news

Bonnie Rochman


Tablet Magazine - Feb 28, 2017
The American College of Obstetricians and Gynecologists (ACOG) recommends that Ashkenazi Jews be screened for Tay-Sachs disease, Canavan disease, cystic fibrosis, and familial dysautonomia, and the American College of Medical Genetics and ...
 

What we're really talking about when we talk about genetic testing


KUOW News and Information - Mar 23, 2017
Now tests can screen for Down syndrome, Tay Sachs disease, spinal muscular atrophy and a long list of other genetic conditions. And there are choices, some tougher than others. “The more access to information we have, the more decisions that have to be ...
 

An LA doctor races to cure deadly diseases and worries about Trump plan to cut NIH funding


The San Diego Union-Tribune - Mar 22, 2017
The list includes breakthroughs in treatment of Tay-Sachs disease, thyroid deficiency in infants, therapies for metabolic disease and for end-stage renal disease, and advances in understanding the link between menopausal hormone therapy and breast ...
 

Tay Sachs Disease - premium items on eBay

NEW Tay-Sachs Disease, Volume 44 (Advances in Genetics)


 

Tay-Sachs Disease by Robert J. Desnick Hardcover Book (English)


 

Advances in Genetics: Tay-Sachs Disease Vol. 44 (2001, Hardcover)


 

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Tay Sachs Disease books

The Still Point of the Turning World


by: Emily Rapp
“A brilliant study of the wages of mortal love.” —The New York Times Book Review

What does it mean to be a success? To be a good parent? To live a meaningful life? Emily Rapp thought she knew the answers when she was pregnant with her first child. But everything changed when nine-month-old Ronan was diagnosed with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  He was not expected to live beyond the age of three. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting and to learn to parent without a future.
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Tay-Sachs Disease


by: Julie Walker
Explore Tay-Sachs, a tragic genetic disease that often kills its victims before the age of five. Includes a disease history and modern approaches to diagnosis and treatment with a review of experimental treatments and promising new avenues of research.
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Testing Fate: Tay-Sachs Disease and the Right to Be Responsible


by: Shelley Z. Reuter

In today’s world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make “responsible” medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-à-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups.
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Tay-Sachs Disease - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers


by: Philip M. Parker
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Tay-Sachs disease is indexed in search engines, such as www.
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Tay Sachs Disease videos

Nathan's Story; Tay-Sachs Disease in the Irish Population


Nathan Harney had Tay-Sachs Disease, a fatal neurodegenerative disease that can be passed on to children when both parents are carriers of an altered gene.
 

Tay-Sachs disease


 

Understanding Tay- Sachs Disease


Written, recorded and edited by UMass Amherst students; Samuel Ustayev, Kirk MacKinnon and Tim Daly.
 

Tay-Sachs Disease


This is a brief description of the clinical, biological and genetic aspects of Tay-Sachs Disease. This brief video was developed by the Division of Genetics and ...
 

Tay sachs disease


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