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"Hug your kids more, because we really aren't promised tomorrow"

Stillwater News Press - Nov 30, 2017
Jenna McKinzie, a blonde-haired angel who battled an extremely rare genetic disorder called Tay-Sachs disease, passed away on Saturday, two months shy of her third birthday. “She was welcomed back into the arms of Jesus...where she received her ...

Kissing cousins: Understanding the genetic risks and benefits when close relatives marry

Genetic Literacy Project - Dec 3, 2017
Ashkenazi Jews, which make up eight million of the 12 million Jews in the world, also practice endogamy and also have higher incidences of a number of genetic diseases including sickle cell anemia and Tay-Sachs disease. But, as Jon Entine points out in ...

Listen to 'Dear Sugars': The Empty Chair Part 2

New York Times - Nov 11, 2017
When Ms. Black learned that her son had Tay-Sachs disease, a fatal congenital disorder, she and her husband decided to have another child. She likens the experience to walking in a city built on top of ruins, “There's always this ruined love, or the ...

Tay Sachs Disease - premium items on eBay

The Official Parent's Sourcebook on Tay-Sachs Disease: A Revised and-ExLibrary


Tay-Sachs Disease by Robert J. Desnick Hardcover Book (English)


Advances in Genetics: Tay-Sachs Disease Vol. 44 (2001, Hardcover)


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Nathan's Story; Tay-Sachs Disease in the Irish Population

Nathan Harney had Tay-Sachs Disease, a fatal neurodegenerative disease that can be passed on to children when both parents are carriers of an altered gene. Babies born with Tay-Sachs disease...

Tay-Sachs disease


Understanding Tay- Sachs Disease

Written, recorded and edited by UMass Amherst students; Samuel Ustayev, Kirk MacKinnon and Tim Daly.

Tay Sachs Disease - Interview with Dr. Adele Schneider

Medical Anchor Kearni Warren talks to Dr. Adele Schneider, Director of Clinical Services at Einstein Healthcare Network, about Tay Sachs and how it has been recently discovered that the disease...

Nineteen Genetic Diseases That Ashkenazi Jews Need to Know About

Ashkenazi Jews are very susceptible to genetic diseases. In fact, 1 in 4 Jews is a carrier for at least 1 of 19 preventable Jewish genetic diseases. Among those diseases are Tay-Sachs disease,...