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TaySachsDisease news

Kindness helps family deal with difficulty of Tay-Sachs disease


Stillwater News Press - Apr 30, 2017
Jenna is the only child in Oklahoma and one of about 16 children in the United States with Tay-Sachs disease that they know of, Jessica said. Jenna started receiving hospice care three days a week in January, the same month she turned 2 years old.
 

How The Jews Beat Tay Sachs


Forward - Apr 23, 2017
Harold and Bayla Gershowitz had a toddler son with Tay-Sachs disease. Kaback helped the Gershowitzes find care for Steven. The other couple, Bob and Karen Zeiger, also had a son, Michael, who was less than a year old. Bob Zeiger was a pediatric intern ...
 

Genetics Company, Amazon, Offering Online Ashkenazi Jewish Carrier Screening Test


The Jewish Press - JewishPress.com - May 14, 2017
... Fanconi anemia (group C), Gaucher disease, glycogen storage disease type 1a, Joubert syndrome 2, maple syrup urine disease type 1A/1B, mucolipidosis type IV, Nemaline myopathy, Niemann-Pick disease type A/B, Tay-Sachs disease, Usher syndrome ...
 

Tay Sachs Disease - premium items on eBay

NEW Tay-Sachs Disease, Volume 44 (Advances in Genetics)


 

Tay-Sachs Disease by Robert J. Desnick Hardcover Book (English)


 

Advances in Genetics: Tay-Sachs Disease Vol. 44 (2001, Hardcover)


 

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Tay Sachs Disease books


The Still Point of the Turning World


by: Emily Rapp
“A brilliant study of the wages of mortal love.” —The New York Times Book Review

What does it mean to be a success? To be a good parent? To live a meaningful life? Emily Rapp thought she knew the answers when she was pregnant with her first child. But everything changed when nine-month-old Ronan was diagnosed with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  He was not expected to live beyond the age of three. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting and to learn to parent without a future.
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Tay-Sachs Disease


by: Randall McPartland
Tay-Sachs disease destroys the nerve cells of the brain and spinal cord, and its symptoms show up in infancy. This book describes the condition and the genetic causes behind it, follows researchers on their path to scientific discovery, identifies people who have heroically cared for children with this heartbreaking disease, and tracks the latest treatments and research aimed at helping those living with it. Sidebars highlight medical breakthroughs and the people who made them.
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Testing Fate: Tay-Sachs Disease and the Right to Be Responsible


by: Shelley Z. Reuter

In today’s world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make “responsible” medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-à-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups.
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Tay-Sachs Disease - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers


by: Philip M. Parker
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Tay-Sachs disease is indexed in search engines, such as www.
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Tay Sachs Disease videos

Nathan's Story; Tay-Sachs Disease in the Irish Population


Nathan Harney had Tay-Sachs Disease, a fatal neurodegenerative disease that can be passed on to children when both parents are carriers of an altered gene.
 

Tay-Sachs disease


 

Understanding Tay- Sachs Disease


Written, recorded and edited by UMass Amherst students; Samuel Ustayev, Kirk MacKinnon and Tim Daly.
 

Tay-Sachs Disease


This is a brief description of the clinical, biological and genetic aspects of Tay-Sachs Disease. This brief video was developed by the Division of Genetics and ...
 

Tay-Sachs Disease ¦ Treatment and Symptoms


http://bit.ly/1bwG3XL◅ Tay-Sachs Disease treatment — Finding the right information about Tay-Sachs Disease treatment & symptoms, is crucial to managing ...