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Here's how to get the most out of UC Riverside's Writers Week

Press-Enterprise - Feb 3, 2017
At 12:30 p.m. is new UCR creative writing faculty member Emily Rapp Black, author of the New York Times best-seller “The Still Point of the Turning World,” about her first child being diagnosed with Tay-Sachs disease, a rare, terminal, degenerative ...

Genetic experts push for awareness of rare Tay-Sachs disease

6abc.com - Mar 8, 2016
Tay Sachs is a devastating genetic disease with no known cure. But now, experts are hoping a new push for awareness could help parents down the road. (WPVI). WPVI. By Erin O'Hearn. Wednesday, March 09, 2016. PHILADELPHIA (WPVI) --. Tay-Sachs is ...

Parents of toddler with Tay-Sachs cherish every second with son

Aiken Standard - Oct 26, 2016
For 28-year-old Jessica Clark of Jackson, her only son, Seaby Nielson Clark, has become her source of strength and comfort. She sees every new day with her 2-year-old who was born with Tay-Sachs disease as a continued blessing. “He is my living miracle ...

Tay Sachs Disease - premium items on eBay

NEW Tay-Sachs Disease, Volume 44 (Advances in Genetics)


Tay-Sachs Disease by Robert J. Desnick Hardcover Book (English)


Advances in Genetics: Tay-Sachs Disease Vol. 44 (2001, Hardcover)


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Tay Sachs Disease books

The Still Point of the Turning World

by: Emily Rapp
“A brilliant study of the wages of mortal love.” —The New York Times Book Review

What does it mean to be a success? To be a good parent? To live a meaningful life? Emily Rapp thought she knew the answers when she was pregnant with her first child. But everything changed when nine-month-old Ronan was diagnosed with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  He was not expected to live beyond the age of three. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting and to learn to parent without a future.
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Testing Fate: Tay-Sachs Disease and the Right to Be Responsible

by: Shelley Z. Reuter

In today’s world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make “responsible” medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-à-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups.
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Tay-Sachs Disease

by: Randall McPartland
Tay-Sachs disease destroys the nerve cells of the brain and spinal cord, and its symptoms show up in infancy. This book describes the condition and the genetic causes behind it, follows researchers on their path to scientific discovery, identifies people who have heroically cared for children with this heartbreaking disease, and tracks the latest treatments and research aimed at helping those living with it. Sidebars highlight medical breakthroughs and the people who made them.
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Tay-Sachs Disease - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers

by: Philip M. Parker
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Tay-Sachs disease is indexed in search engines, such as www.
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Tay Sachs Disease videos

Nathan's Story; Tay-Sachs Disease in the Irish Population

Nathan Harney had Tay-Sachs Disease, a fatal neurodegenerative disease that can be passed on to children when both parents are carriers of an altered gene.

Tay-Sachs disease


Understanding Tay- Sachs Disease

Written, recorded and edited by UMass Amherst students; Samuel Ustayev, Kirk MacKinnon and Tim Daly.

Tay-Sachs Disease

This is a brief description of the clinical, biological and genetic aspects of Tay-Sachs Disease. This brief video was developed by the Division of Genetics and ...

Tay Sachs Disease

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